Alzheimer's & Dementia: The Journal of the Alzheimer's Association
Volume 4, Issue 5 , Pages 345-352 , September 2008

Personal perspectives of persons with Alzheimer's disease and their carers: A global survey

  • Alexander Kurz

      Affiliations

    • Munich University of Technology and Science, Munich, Germany
    • ,
  • Mary Schulz

      Affiliations

    • Alzheimer Society of Canada, Toronto, Ontario, Canada
    • ,
  • Peter Reed

      Affiliations

    • Alzheimer's Association, Chicago, IL, USA
    • ,
  • Marc Wortmann

      Affiliations

    • Alzheimer's Disease International, London, UK
    • Corresponding Author InformationCorresponding author. Tel.: 44-20-7981-0880; Fax: 44-20-7928-2357
    • ,
  • Jesús Rodrigo

      Affiliations

    • La Confederación Española de Familiares de Enfermos de Alzheimer y otras Demencias, Pamplona, Spain
    • ,
  • Heike von Lützau Hohlbein

      Affiliations

    • Deutsche Alzheimer Gesellschaft, Berlin, Germany
    • ,
  • George Grossberg

      Affiliations

    • St Louis University School of Medicine, St Louis, MO, USA

References 

  1. Ferri CP, Prince M, Brayne C, Brodaty H, Fratiglioni L, Ganguli M, et al. Global prevalence of dementia: a Delphi consensus study. Lancet. 2005;366:2112–2117
  2. Fratiglioni L, Launer LJ, Andersen K, Breteler MM, Copeland JR, Dartigues JF, et al. Incidence of dementia and major subtypes in Europe: a collaborative study of population-based cohorts—Neurologic Diseases in the Elderly Research Group. Neurology. 2000;54(Suppl 5):S10–S15
  3. Coste JK. The ticking meter. Am J Alzheimers Dis Other Demen. 2004;19:316–318
  4. Qiu J. Ticking time bomb faced by China's ageing population. Lancet Neurol. 2007;6:582–583
  5. Wimo A, Karlsson G, Sandman PO, Winblad B. Care of patients with dementia–a ticking cost bomb?. Nord Med. 1995;110:123–126
  6. Aminzadeh F, Byszewski A, Molnar FJ, Eisner M. Emotional impact of dementia diagnosis: exploring persons with dementia and caregivers' perspectives. Aging Ment Health. 2007;11:281–290
  7. Byszewski AM, Molnar FJ, Aminzadeh F, Eisner M, Gardezi F, Bassett R. Dementia diagnosis disclosure: a study of patient and caregiver perspectives. Alzheimer Dis Assoc Disord. 2007;21:107–114
  8. Lingler JH, Nightingale MC, Erlen JA, Kane AL, Reynolds CF, Schulz R, et al. Making sense of mild cognitive impairment: a qualitative exploration of the patient's experience. Gerontologist. 2006;46:791–800
  9. Stechl E, Lammler G, Steinhagen-Thiessen E, Flick U. Subjective perception of and coping with dementia in its early stages (A qualitative interview study with people with dementia and their relatives—SUWADEM). Z Gerontol Geriatr. 2007;40:71–80
  10. Logsdon RG, McCurry SM, Teri L. A home health care approach to exercise for persons with Alzheimer's disease. Care Manag J. 2005;6:90–97
  11. Meaney AM, Croke M, Kirby M. Needs assessment in dementia. Int J Geriatr Psychiatry. 2005;20:322–329
  12. Jaglal S, Cockerill R, Lemieux-Charles L, Chambers LW, Brazil K, Cohen C. Perceptions of the process of care among caregivers and care recipients in dementia care networks. Am J Alzheimers Dis Other Demen. 2007;22:103–111
  13. Ready RE, Ott BR, Grace J. Insight and cognitive impairment: effects on quality-of-life reports from mild cognitive impairment and Alzheimer's disease patients. Am J Alzheimers Dis Other Demen. 2006;21:242–248
  14. Travis SS, Kao HF, Acton GJ. Helping family members manage medication administration hassles. J Psychosoc Nurs Ment Health Serv. 2005;43:13–15
  15. Hirschman KB, Joyce CM, James BD, Xie SX, Karlawish JH. Do Alzheimer's disease patients want to participate in a treatment decision, and would their caregivers let them?. Gerontologist. 2005;45:381–388

PII: S1552-5260(08)02836-7

doi: 10.1016/j.jalz.2008.06.002

Alzheimer's & Dementia: The Journal of the Alzheimer's Association
Volume 4, Issue 5 , Pages 345-352 , September 2008

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